I'm living with Fibrodysplasia Ossificans
Progressiva — a condition so rare most
doctors have never heard of it.
But this channel is for more than FOP.
It's for anyone carrying something invisible.
Something the world hasn't learned to see yet.
Through storytelling, poetry, and honest
reflection — I share what it means to live
fully inside a life that was never supposed
to be easy.
If you've ever felt unseen, misunderstood,
or like your story was too rare to matter —
this channel is for you. 🖤
New videos every week.
#TheRareRuby #FOPAwareness
#FibrodysplasiaOssificansProgressiva
#InvisibleStruggles #RareDisease #softstrenght #Growth
The Rare Ruby
What does “quiet strength” look like for you right now?
5 months ago | [YT] | 1
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The Rare Ruby
This year, may you give yourself
the permission you’ve been waiting for:
to rest,
to pause,
to simply be.
Some days will whisper.
Some days will roar.
All of them are yours to feel in 2026.
As we step into this new year,
I want to know…
What helped you stay gentle last year?
What will help you stay gentle this year?
Stay rare. Stay radiant. Stay unbreakable.
5 months ago (edited) | [YT] | 1
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The Rare Ruby
5 months ago | [YT] | 1
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The Rare Ruby
Quick reminder for your heart:
Some days, self-worth whispers. Other days, it sings.
But it’s always there — steady, gentle, waiting for you to notice it.
Say this slowly:
✨ “I deserve love. I deserve rest. I deserve peace.
My value is not up for debate.
I am allowed to take up space.” ✨
Drop one word that describes how you want to feel this week. 🌸
6 months ago | [YT] | 1
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The Rare Ruby
There’s a kind of pain that doesn’t scream — it whispers.
And I used to think silence was my escape… until it became my story.”
Today, I’m learning that even silence can speak — through art, through awareness, through courage.
Let’s build a space for stories that heal.
💬 Share one word that describes your strength today.
Have you ever found beauty in something that once broke you? 💎
#TheRareRuby #FOPAwareness #TransformingPain #PoeticHealing
7 months ago | [YT] | 0
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The Rare Ruby
Life no easy sometimes, but we still move. 🙏🏽
In this new vlog, I’m showing what a normal day looks like living with FOP — no pity, just purpose.
Watch, learn, share — awareness starts with understanding.
💎 A Day in My Life: Living with FOP
#TheRareRuby #FOPAwareness #Nigeria
#FacelessVlog
7 months ago | [YT] | 1
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The Rare Ruby
8 months ago | [YT] | 0
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