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5:10

I Have a Condition Most Doctors Have Never Seen.This Is My Reality.

The Rare Ruby

Shared 8 months ago

6 views

4:51

What It Actually Feels Like Every Day.

The Rare Ruby

Shared 4 weeks ago

9 views

5:02

I Have the Rarest Condition in the World. Here's What Nobody Shows You. #fopawareness #nigerianstory

The Rare Ruby

Shared 7 months ago

8 views

4:36

Finding My People Online When None Existed Around Me in Real Life

The Rare Ruby

Shared 1 month ago

0 views

6:07

Nobody Told Me Being Sick in Nigeria Would Cost Me This Much.

The Rare Ruby

Shared 1 month ago

4 views

4:31

Love Without Language —Nigerian Families and Chronic Illness

The Rare Ruby

Shared 3 weeks ago

13 views

8:36

what I wish people understood about rare diseases#rarediseaseawareness #rarevoices

The Rare Ruby

Shared 6 months ago

0 views

6:49

💎 Transforming Pain into Art and Awareness | My FOP Story of Strength | A Rare Ruby Original

The Rare Ruby

Shared 7 months ago

3 views

4:26

I Grieved the Life I Was Supposed to Have.Then I Built a Better One.

The Rare Ruby

Shared 1 month ago

4 views

3:52

I Was Not Strong. I Was Just Too Exhausted to Fall Apart in Public.

The Rare Ruby

Shared 1 month ago

1 view

5:15

What the People Who Love Someone With a Rare Disease Actually Need to Hear #disabilitysupport

The Rare Ruby

Shared 5 months ago

1 view

5:01

I Was Misdiagnosed Multiple Times. Here's What Nigerian Doctors Kept Missing.

The Rare Ruby

Shared 2 months ago

1 view

5:40

Living With FOP — The Part That Goes Unsaid.

The Rare Ruby

Shared 6 months ago

0 views

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