Lurie Institute for Disability Policy
The Lurie Institute for Disability Policy leads research efforts to improve the well-being of people with disabilities and their families, across the lifespan. We are located at Brandeis University within the Heller School. The Lurie Institute houses four major federally-funded programs of research: the National Research Center for Parents with Disabilities, the Community Living Policy Center, the National Center for Disability and Pregnancy Research, and the Community Living Equity Center.
#DisabilityResearch #DisabilityPolicy
Lurie Institute for Disability Policy
Our research shows that Black disabled women experience worse pregnancy care and outcomes compared to their white disabled peers. They face stigma, harmful societal assumptions, and systemic racism, which damage the joys of motherhood they deserve, and the unique experiences they bring.
In this video, Celebrating Black Maternal Health, Laurie Bertram Roberts, Morénike Giwa Onaiwu, and Heather Watkins share the joys and challenges of Black disabled motherhood, and discuss their hopes for a more equitable future. They note that advocacy efforts, along with calls for health literacy, policy change, and training for clinicians will help create a future where black disabled mothers receive the care they deserve.
#BMHW26 #BMHW #BlackMaternalHealth #BlackMaternalHealthWeek @blackmamasmatteralliancebm5923
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Lurie Institute for Disability Policy
Black Maternal Health Week is observed annually from April 11–17, and is a national week founded and led by Black Mamas Matter. It is dedicated to addressing racial disparities in maternal health outcomes for Black women, and promoting solutions through activism and community building. Research shows that when pregnant women lack accurate health information, comprehensive care, and adequate support, both mothers and babies face higher risks.
Unfortunately, in the United States, who you are and the resources available to you can significantly influence the quality of healthcare you receive. Our disability & pregnancy research center conducted a study with eight Black Deaf and Hard of Hearing (DHH) women to better understand their experiences with pregnancy-related healthcare. Many of the women faced serious barriers to care, such as difficulty understanding doctors or securing interpreters, which left them without critical medical information.
Based on their experiences, they advise Black DHH women to advocate for interpreters, ask questions confidently, and connect with others. When these women had proper support they could communicate effectively and advocate for their needs. Ultimately, the responsibility lies with healthcare providers and institutions to improve accessibility for Black DHH women.
#BMHW26 #BMHW #BlackMaternalHealth #BlackMaternalHealthWeek @blackmamasmatteralliancebm5923 .
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