Welcome to He Is Faithful Ministry 🙏💜
Hey friend,
I'm really glad you're here.
This is He Is Faithful Ministry — a place where I share God's Word and my real, everyday walk with Jesus. He's been reshaping my life and my family's with His steady, relentless grace.
For years I was building my own brand and chasing influence, but I was drifting inside. Then God gently led me to repentance and called me back home. Later, Jesus' words in Matthew 7 — “Depart from Me, I never knew you” — hit me in a fresh way. They reminded me how much it matters to truly know Him, not just look the part.
Grace isn't permission to keep drifting. It's His kind invitation to return, surrender, and finally rest in being fully known by the Father.
This ministry is a journey of hope and grace, and my heart is grateful to share it with you. Subscribe and journey with me as we rest in His presence and learn how faithful He really is. 💜
He Is Faithful Ministry
As a 5-star self-published author, I once built my whole personal brand around my stories, my voice, and my dreams… but I laid it all down in obedience when Jesus called me to preach. I left that former life behind because I’ve encountered the living Christ who met me in my brokenness, tears, and hidden struggles. With everything in me now, I simply want to point you to Him — not as rules or rituals, but as your closest Lord, your faithful God, and the Saviour who redeems and transforms. My prayer is that you’ll hear His call too and follow Him fully. 💗🙏
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He Is Faithful Ministry
Koolen-de Vries Syndrome (KdVS): A Personal Family Journey 💗
Hello, I'm a mum and individual who has walked a unique path with Koolen-de Vries Syndrome (KdVS). I was diagnosed with KdVS alongside my second-born child, right while I was pregnant with my third. My third child was also diagnosed with KdVS. My firstborn does not have it. Through it all, I've learned that every one of my children is wonderfully made by God, each with their own beautiful purpose and gifts. This post shares what I've learned about KdVS, our family's story, and resources that have helped us.
What is Koolen-de Vries Syndrome (KdVS)?
KdVS is a rare genetic condition caused by a deletion on chromosome 17 (specifically at 17q21.31, which includes the KANSL1 gene) or by a pathogenic variant (mutation) in the KANSL1 gene itself. It affects about 1 in 16,000 to 30,000 people and leads to a range of developmental, physical, and medical features that can vary widely from person to person.
Common characteristics often include:
- Developmental delays and intellectual disability : Mild to moderate, with speech and language delays being very common (often 100% of cases).
- Hypotonia (low muscle tone): Especially noticeable in infancy and early childhood, leading to delays in milestones like sitting, walking, or feeding.
- Distinctive facial features: Such as a broad forehead, pear-shaped nose, and other subtle dysmorphisms.
- Other possible issues: Epilepsy (about 1/3 of people), congenital heart, kidney, or urologic anomalies, vision or hearing challenges, joint hypermobility, and friendly, sociable personalities.
There's no cure, but early intervention, therapies (speech, occupational, physical), and regular medical monitoring make a huge difference. Many individuals with KdVS lead happy, fulfilling lives with the right support.
Our Family's Story
My journey with KdVS started when my second child was born with hypotonia (floppy baby syndrome) and severe jaundice. 14 months later, genetic testing (tri gnome sequencing test) revealed the diagnosis for both of myself and my son during my pregnancy (3 months along) with my third child. Imagine the mix of emotions—surprise, worry. And then confirmation from a blood test after my baby daughter was born, that she also carried it. It felt overwhelming at times, but it also brought clarity and a deeper appreciation for each of my kids.
My firstborn is thriving without KdVS and brings such joy and balance to our family. My second and third, along with me, navigate the ups and downs of KdVS together. We've seen the hypotonia, the speech delays, and the incredible resilience in my children. They are kind, loving, and full of personality—true blessings.
I hold tightly to the truth that all three of my children are fearfully and wonderfully made by God (Psalm 139:14). KdVS doesn't define them; it's just one part of their story. We've celebrated every milestone, big or small, and leaned on faith, family, and community.
Living with KdVS: Hope and Practical Tips
From one parent to another:
- Early intervention is key: Therapies started young have helped my kids tremendously with motor skills, communication, and confidence (physio and speech and language therapy)
- Genetic counseling: helped our family understand recurrence risks (50% chance if one parent also has KDVS diagnosis)
- Community matters — Connecting with other KdVS families reduces isolation. The Koolen-de Vries Syndrome Foundation has been an incredible resource for information, connections, and advocacy.
- Celebrate strengths — Many with KdVS are described as friendly, amiable, and cooperative. My kids light up rooms with their smiles and affection.
Resources and Support
- Koolen-de Vries Syndrome Foundation: kdvsfoundation.org — Great for family registry, events, research updates, and the "Kool Klinic."
- GeneReviews and NORD: Detailed medical info.
- Local early intervention programs, developmental pediatricians, and genetic specialists.
- Faith-based support groups can be a wonderful source of encouragement.
If you're reading this and your family is touched by KdVS, know you're not alone. Reach out, ask questions, and remember to cherish the unique ways your loved ones shine. Our family is stronger because of this journey, and I believe God has big plans for each of my children.
With love and hope,
A Kool KdVS mama 💗
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Blessed to recieve these words of encouragment today. ☺️
1 Thessalonians 5:11
New International Version
11 Therefore encourage one another and build each other up, just as in fact you are doing. 🙏💗🙌
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He Is Faithful Ministry
People may laugh at your passion for Jesus. Keep shining anyway! 🌟🙏💗
Matthew 5:14-16 (NIV):"You are the light of the world. A town built on a hill cannot be hidden. Neither do people light a lamp and put it under a bowl. Instead they put it on its stand, and it gives light to everyone in the house. In the same way, let your light shine before others, that they may see your good deeds and glorify your Father in heaven."
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The world said, 'Get lost, you don't belong here.' Jesus says, 'You are worth my life. Follow me.' That's my King! 🙏
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He Is Faithful Ministry
Hey guys, I wanted to share something really personal with you.
Back in 2023, I was so excited about self-publishing my first book all about embracing your uniqueness. I had big dreams for “Thrive Rare” and honestly poured my heart into it. But then 2026 came, and everything shifted.
Jesus gently tapped me on the shoulder and whispered that it was time to lay it all down. So I did. I traded the book and the personal brand for something so much deeper — sharing the Gospel and God’s beautiful Word with whoever will listen.
“Thrive Rare” has now become He Is Faithful Ministry.
I’m honestly just so grateful. Grateful that He reminded me it’s never been about me — it’s always been about Him. He alone deserves every bit of praise, honor, and glory. My life feels more alive than ever because I’m finally walking in what He called me to do.
I’m fully committed to shining His light and sharing His love with the world, one conversation, one post, one testimony at a time. He truly is faithful. 🙏💗🙌
#HeIsFaithful #JesusChangedMyLife #GodsCalling #SurrenderedHeart #FaithJourney #ShareTheGospel #JesusFirst #KingdomOverEverything #ChristianTestimony #WalkByFaith #GraceUponGrace #HeIsWorthIt
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