Chronic Mom and Son - Invidious

Chronic Mom and Son

Hi, I’m Miesha— a single mom, medical caregiver, and fighter living with autoimmune disease while raising my incredible son with a terminal disease TUBB4A Leukodystrophy and autism.

After years of being overlooked by doctors, both my son and I were finally diagnosed... and our world flipped upside down.

Here, we share raw, real moments of navigating life after diagnosis — therapy days, flare days, messy mornings, adaptive parenting, and glimpses of joy along the way.

If you’re a medical mama, a caregiver, or someone fighting silent battles yourself, know this: you’re not alone.

We’re learning to adapt, survive, and live beautifully in the messy middle — one day at a time.

Subscribe to follow our journey, get support, and find the hope you deserve. 💛

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Special needs journey & hygiene with tri-head toothbrush #specialneeds #hygiene #journey

Chronic Mom and Son

Shared 56 years ago

93 views

1:00

Mobility is fading due to tubb4a Leukodystrophy #tubb4a #leukodystrophy #mobility

Chronic Mom and Son

Shared 56 years ago

34 views

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Special needs journey for Leukodystrophy w/ physical therapy #leukodystrophy #specialneeds #pt

Chronic Mom and Son

Shared 56 years ago

1.2K views

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Gtube life with Leukodystrophy is a part of special needs! #gtube #leukodystrophy #specialneeds

Chronic Mom and Son

Shared 56 years ago

13 views

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Gtube change for medically complex child w/ Leukodystrophy #gtube #leukodystrophy #medicallycomplex

Chronic Mom and Son

Shared 56 years ago

15 views

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Tubb4a Leukodystrophy breaks my heart everyday. #leukodystrophy #tubb4a #heartbreak

Chronic Mom and Son

Shared 56 years ago

540 views

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Physical therapy for tubb4a Leukodystrophy is needed. #leukodystrophy #tubb4a #physicaltherapy

Chronic Mom and Son

Shared 56 years ago

1.2K views

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Learning to adapt to tubb4a Leukodystrophy #tubb4a #leukodystrophy #adapting

Chronic Mom and Son

Shared 56 years ago

1K views

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Tubb4a Leukodystrophy is impeding his mobility day by day #leukodystrophy #tubb4a #mobility

Chronic Mom and Son

Shared 56 years ago

20 views

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Bus etiquette matters for special needs kids. #bus #specialneeds #handicap

Chronic Mom and Son

Shared 56 years ago

531 views

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Physical therapy for tubb4a Leukodystrophy is a must! #leukodystrophy #tubb4a #physicaltherapy

Chronic Mom and Son

Shared 56 years ago

1.6K views

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Leukodystrophy rare disease struggles are daily! #leukodystrophy #rarediseases #advocate #tubb4a

Chronic Mom and Son

Shared 56 years ago

649 views

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Medical journey court for tubb4a Leukodystrophy #leukodystrophy #tubb4a #court #medicaljourney

Chronic Mom and Son

Shared 56 years ago

215 views

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Watching him loose abilities is so hard! #leukodystrophy #tubb4a #rarediseases #heartbreak

Chronic Mom and Son

Shared 56 years ago

169 views

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GRWM special needs medical mama edition- Leukodystrophy #leukodystrophy #grwm #medicalmom #tubb4a

Chronic Mom and Son

Shared 56 years ago

543 views

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Leukodystrophy advocacy blooper! #leukodystrophy #advocacy #tubb4a #bloopers

Chronic Mom and Son

Shared 56 years ago

139 views

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Leukodystrophy is a hard diagnosis to endure. #leukodystrophy #tubb4a #rarediseases

Chronic Mom and Son

Shared 56 years ago

177 views

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Leukodystrophy requires Botox to help #leukodystrophy #botox #rarediseases #tubb4a

Chronic Mom and Son

Shared 56 years ago

17 views

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Leukodystrophy is hard but we have hope! #leukodystrophy #advocate #rarediseases #tubb4a

Chronic Mom and Son

Shared 56 years ago

21 views

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Physical therapy for tubb4a Leukodystrophy #leukodystrophy #physicaltherapy #tubb4a

Chronic Mom and Son

Shared 56 years ago

1.2K views

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Leukodystrophy is effecting mobility and balance! We use AFO braces now. #leukodystrophy #tubb4a

Chronic Mom and Son

Shared 56 years ago

11 views

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Leukodystrophy is taking away his mobility. #leukodystrophy #rarediseases #tubb4a

Chronic Mom and Son

Shared 56 years ago

1.2K views

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Leukodystrophy is robbing his skill sets he had just a year ago! #leukodystrophy #raredisorders

Chronic Mom and Son

Shared 56 years ago

1.5K views

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Leukodystrophy is taking away his speech & movement. Pls share! #leukodystrophy #tubb4a

Chronic Mom and Son

Shared 56 years ago

800 views

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IEP meeting coming up soon! #ieps #iepmeetings #iepmeeting

Chronic Mom and Son

Shared 56 years ago

356 views

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He was diagnosed with TUBB4A Leukodystrophy, a rare brain disorder #leukodystrophy

Chronic Mom and Son

Shared 56 years ago

65 views

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Chronicmomandson advocating hypomyelinting Leukodystrophy #leukodystrophy #advocate #challenges

Chronic Mom and Son

Shared 56 years ago

16 views

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Chronicmomandson advocacy #leukodystrophy #rarediseases #advocacy

Chronic Mom and Son

Shared 56 years ago

1.4K views

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Chronicmomandson advocates #advocate #rarediseases #leukodystrophy

Chronic Mom and Son

Shared 56 years ago

1K views

1:00

Chronicmomandson advocates #leukodystrophy #rarediseases #advocate

Chronic Mom and Son

Shared 56 years ago

59 views

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Leukodystrophy — a rare disease that's taking away his abilities but not his will! #Leukodystrophy

Chronic Mom and Son

Shared 56 years ago

26 views

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Chronicmomandson equine therapy #horsetherapy #equinetherapy #cowboy

Chronic Mom and Son

Shared 56 years ago

1.4K views

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Chronicmomandson equine therapy! #equinetherapy #horsetherapy #cowboy

Chronic Mom and Son

Shared 56 years ago

1.3K views

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Sensory input #steeltonguedrumamazon #sensoryplay #autism

Chronic Mom and Son

Shared 56 years ago

41 views

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Chronicmomandson living life with Leukodystrophy #leukodystrophy #tubb4a #rarediseases

Chronic Mom and Son

Shared 56 years ago

100 views

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What if right tools changes a child’s life? #leukodystrophy #earlyintervention #adaptiveequipment

Chronic Mom and Son

Shared 56 years ago

13 views

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Red light therapy helps my arthritis inflammation #ankylosingspondylitis #inflammation #relief

Chronic Mom and Son

Shared 56 years ago

127 views

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#oral #oralcare #oralhealth #oralcareroutine #teeth #teethplaque #teethcleaning

Chronic Mom and Son

Shared 56 years ago

24 views

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#cofee #mushroomcoffee #mushroom #mushroombenefits #mushrooms #coffeebreak

Chronic Mom and Son

Shared 56 years ago

513 views

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#bluetoothkeyboard #keyboard #traveltech #tinykeyboard #travelkeyboard #wirelesskeyboard

Chronic Mom and Son

Shared 56 years ago

91 views

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#ryze #ryzecoffee #mushroom #mushroomcoffee #mushroombenefits #mushrooms #coffee

Chronic Mom and Son

Shared 56 years ago

10 views

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#wyze #floorlamp #lighting #brightlight #lamp #remote

Chronic Mom and Son

Shared 56 years ago

466 views

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#phonegrip #phonetech #phoneaccessory #phoneaccessories #camera #bluetooth

Chronic Mom and Son

Shared 56 years ago

508 views

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lustriva #hairgrowth #hairgrowthjourney #multivitamin #maryruthsorganics #maryruths #wellness

Chronic Mom and Son

Shared 56 years ago

747 views

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#aromatherapy #aroma #carsmell #scent #smellgood

Chronic Mom and Son

Shared 56 years ago

146 views

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#shelfs #shelf #storage #space #organize #shelving #shelvingrack

Chronic Mom and Son

Shared 56 years ago

514 views

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#skincare #skinroutine #koreanskincareproduct #koreanskincareroutine #koreanskincare

Chronic Mom and Son

Shared 56 years ago

17 views

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#keyboard #shopping #bluetoothkeyboard #keyboardmousecombo #ledkeyboard

Chronic Mom and Son

Shared 56 years ago

290 views